Parenting and Advocacy for Angelman Syndrome with Pooja Joshi Bhadrige
Motherhood is a journey filled with love, learning, and unexpected challenges. But what happens when your child is diagnosed with a rare genetic condition—one so little understood that you feel lost and alone?
This week on “Sexuality and Identity,” we bring you an inspiring story of resilience, hope, and action. Host Shireen Ashton converses with Pooja Joshi Bhadrige, Founder and Director of Angelman Foundation India (AFI), a mother who turned personal adversity into a mission to help others.
Pooja opens up about her emotional journey after her son’s Angelman Syndrome diagnosis, the struggles of parenting a child with special needs, and the strength it takes to navigate a world that often lacks awareness and resources. Through AFI, she has built a supportive community for parents, offering guidance on everything from emotional well-being to diet and financial planning.
Her story is not just about hardship—it’s about finding purpose in pain and turning it into a force for change.
Tune in to this heartfelt conversation and join us in raising awareness because no parent should walk this journey alone.
Produced by Global Indian Series for the Global Indian Network.
Script by Rajan Nazran
original idea: Rajan Nazran
Podcast Host: Shireen Ashton
Introduction music: (Sound Title) – by Steven F Allen
https://freesound.org/people/audiomirage/
https://soundclick.com/AuDioChosisStevenFAllenAuDioMiRage
About Pooja Joshi Bhadrige
Pooja Joshi Bhadrige is the Founder and Director of Angelman Foundation India (AFI). With an MBA background and a professional career in banking, she later transitioned into a full-time role as a mother and advocate. Her journey into the world of rare genetic disorders began in 2015 when her son, Yug, was diagnosed with Angelman Syndrome (AS).
Determined to create a support system for families navigating similar challenges, Pooja launched India’s first dedicated website for Angelman parents and children in 2017. Recognizing the need for greater awareness and community support, she established AFI, officially registering it in November 2020.
Today, she is committed to expanding awareness of Angelman Syndrome across India and fostering a strong, supportive network of families. Through AFI, she continues to empower parents, advocate for better resources, and work towards improving the quality of life for children with AS.
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